Cauda Equina Foundation News 

Cauda Equina Foundation, Inc. serves to improve the quality of life and care for individuals living with cauda equina syndrome and associated disorders. Part of this mission means representing you at various events around the world to educate and advocate for cauda equina syndrome related disorders. We have represented our constituents at local, state, national, and international hearings, campaigns, and consortiums. Here are just some of the places we have represented our constituents at:

• Food & Drug Administration Opioid Policy Steering Committee Hearings
• Food & Drug Administration Chronic Pain Patient Focused Drug Development Hearing
• National Institute of Health Rare Disease Day Conferences
• National Organization of Rare Disorders Conferences
• Rare Advocacy Movement Advocacy Campaigns- STAT ACT
• Don't Punish Pain Rallies
• Global Genes Conferences
• Various State legislatures' open comments- particularly on disability, insurance coverage, pain care access and equality, and quality of life 
• Research Initiatives
• PhotoVoice Projects