5 Year Strategic PlaN

Objectives

​2020 to 2025 Strategic Objectives

1. Increase Research & Education Capacity
2. Increase Patient Support Capacity
3. Increase Revenue 

Goals

Research:
1. Natural History Study
2. Standards of Care
3. Core Outcome Measures
4. CES Severity Scoring
5. Centers of Excellence

Education:
1. Annual Symposium
2. Abstracts
3. Round Tables
​4. Booklet
5. Podcast
6. Lectures
7. Live Q & A with an expert

Patient Support
1. 24/hour Phone Line
2. Peer to Peer Mentoring
3. Employment Support
4. Social Work
5. Centers of Excellence
6. Worldwide CES Expert Access
7. Patient Meet Ups (virtual during COVID-19)

Revenue
1. Earned Income Revenue Streams
2. Grants
3. Philanthropy
4. Memberships
5. Endowments


Administrative
4. Paid Patient Support Staff 
5. Paid Development Director