RESEARCH
Cauda Equina Foundation, Inc. focuses on research to reach our vision to eradicate the effects of neurological devastation resulting from cauda equina syndrome. Research on cauda equina syndrome allows us to make recommendations for standards of care in the diagnosis and treatment of both acute and chronic cauda equina syndrome. It also directs our development of education programs for healthcare providers and patients. The ultimate goal in our research is to improve the quality of life and care for individuals living with cauda equina syndrome and associated disorders and eventually eradicate the catastrophic devastation. We conduct in-house research as well as provide grants and financial support to other researchers for cauda equina syndrome.
Previous Research Studies
Post-Surgical Cauda Equina Syndrome Patient Outcomes Delphi Survey
A team of researchers at the University of Liverpool and The Walton Centre NHS Foundation Trust Neuroscience Department surveyed realized through a literature review and conducting one on one patient interviews that there were many issues related to cauda equina syndrome. Unfortunately, none were prioritized by patient nor providers to be important patient outcome measures.
Thus, patients, caregivers, and physicians were invited to complete a Delphi survey series to determine aid in determining a consensus on post-surgical cauda equina syndrome patient outcome measures. This was a series of surveys was to help researchers better understand the effects on the patients of compression injury cauda equina syndrome post surgically.
Following the Delphi survey series, a consensus meeting was held in Liverpool, UK at the NHS Walton Centre Neuroscience Department. Patients, providers, and caregivers from various backgrounds and from different parts of the world that completed the Delphi series in its entirety were invited to participate in the consensus meeting to further discuss patient outcomes in post compression injury surgery. Cauda Equina Foundation helped to raise funding to cover part of the associated costs of the consensus meeting.
This was an important novel study to determine the most important challenges and outcomes patients with cauda equina syndrome face. Much of the research on cauda equina syndrome fails to capture the true impact of the disease due to leaving the patients out of the discussion. This study was one of the first of its kind to include the patients and get a true patient perspective of the impacts of the disease.
Initial study participation has closed and this study has been completed. For those of you that participated, thank you for helping us work our way to CES progress! Please continue to check back for the results of the study. A huge THANK YOU to the University of Liverpool, The Walton Centre NHS Neuroscience Department, and Dr. Nisaharan Srikandarajah. With your dedication we are pioneering the field of cauda equina syndrome to improve the quality of life and care for individuals living with cauda equina syndrome and associated disorders.
A team of researchers at the University of Liverpool and The Walton Centre NHS Foundation Trust Neuroscience Department surveyed realized through a literature review and conducting one on one patient interviews that there were many issues related to cauda equina syndrome. Unfortunately, none were prioritized by patient nor providers to be important patient outcome measures.
Thus, patients, caregivers, and physicians were invited to complete a Delphi survey series to determine aid in determining a consensus on post-surgical cauda equina syndrome patient outcome measures. This was a series of surveys was to help researchers better understand the effects on the patients of compression injury cauda equina syndrome post surgically.
Following the Delphi survey series, a consensus meeting was held in Liverpool, UK at the NHS Walton Centre Neuroscience Department. Patients, providers, and caregivers from various backgrounds and from different parts of the world that completed the Delphi series in its entirety were invited to participate in the consensus meeting to further discuss patient outcomes in post compression injury surgery. Cauda Equina Foundation helped to raise funding to cover part of the associated costs of the consensus meeting.
This was an important novel study to determine the most important challenges and outcomes patients with cauda equina syndrome face. Much of the research on cauda equina syndrome fails to capture the true impact of the disease due to leaving the patients out of the discussion. This study was one of the first of its kind to include the patients and get a true patient perspective of the impacts of the disease.
Initial study participation has closed and this study has been completed. For those of you that participated, thank you for helping us work our way to CES progress! Please continue to check back for the results of the study. A huge THANK YOU to the University of Liverpool, The Walton Centre NHS Neuroscience Department, and Dr. Nisaharan Srikandarajah. With your dedication we are pioneering the field of cauda equina syndrome to improve the quality of life and care for individuals living with cauda equina syndrome and associated disorders.
IRAS: 235208 Version: 1.0 Date: 01/02/18
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